Thursday, July 29, 2010

First Round of Chemo

This morning I went in for my first round of chemo. I first had a quick ECHO and an office visit discussing the results of the scans I had a few days ago. No issues to report! Cancer, from what they could see from the bone scan and the CT scan, did not spread anywhere else in the body!
I think the only thing was that I did get a finger shaken at me was because I am not doing my exercises. I thought they were optional... not really, I'm just scared it is going to hurt stretching my arms out. The PA showed me the different excesses/stretches I am to be doing, so I guess I better start. No more using my surgery as a crutch. I know I still have to take things easy, but I can kick it up a notch.
Well, chemo was a breeze. They discussed everything with me again, and asked for questions, again. This is greatly appreciated, so I am not complaining, so please don't thing I am. Anyway, they sat me in a nice cushy recliner, gave me a remote, and fixed me up with a nice IV.
They first put in an anti nausea medicine, then a relaxant, and then two different chemo meds. I think we were there for a little over 2 hours. They kept me warm with blankets and I had a never ending supply of beverage.
Mike stayed with me, but I think he was bored out of his mind. I was watching Divorce Court and the Martha Stewart Show. I think all Mike did the whole time was play on his iPhone. I had some books I wanted to get started on, but because the IV was in my arm, when i moved it, well... there was a bit of a mess. Luckily, I get a port inserted in a few weeks, so I can move more and read without issue. I do have to go back tomorrow to get a shot to bring up my white blood count. That's one of the biggest fears, along with infection. So we are following the doctor's instructions to a tee.
I feel fine, with the exception of being very sleepy. I think I took a nice long nap. Mike took my 4 year old to get the breaks on his truck fixed, so the house was nice and quiet, but apparently I missed them coming home with the baby and eating dinner. I ate a little, but my tummy is not so happy, also, for some reason my surgery sites are a lot more tender than normal. Good thing I still have all that pain medicine! Oh, and I have the worst headache ever! The nurse said they game me a steroid, and that comes with it.
On two other notes... I am going to go check out the wig again tomorrow. They ordered it in a more red than blond, and I need to see which I love more! I am kinda excited about this.
And.... Disney is on! We were supposed to be leaving next Thursday. We go around the same time every year to celebrate our anniversary, and now the kids' birthdays. This trip has been paid for since April, so we were going. No questions. However, with chemo, heat, and dehydration it is not a good thing, so we were told not to go in August unless I was okay going to an out of state hospital... nope!
Well, the Disney folks were, after my travel agent working her butt off for weeks, got our vacation moved to November. The Oncologist said it would be great for me to get out and be "normal". So, it looks like we will be going the week before Thanksgiving. Chemo will almost be over and as long as I keep hand sanitizer and wipies with me, I will be good. I may even be okay riding most of the rides (as long as motion sickness doesn't bother me at that time). I am super excited! They will already have most of their Christmas stuff up and it will be nice and the weather cool. So happy! Well, that is if American Airlines will cooperate with us. So far, they are our issue. We just don't want to be out extra money by cancelling because we did not pay for that wonderful insurance they ask you to purchase. It's going to cost $500 per ticket (on top of the tickets we already purchased) to cancel. To move the dates, I don't think they charge much, but again, we are still dealing with them... Oh, and the airlines don't seem to be phased by doctor's notes, just FYI.
Oh... and in case you were wondering about Disney.. it was paid for long ago. I got a super awesome deal on this (40% off) and there were only specific dates that I could choose for. Since summer was out of the question. I had to choose dates that fell under the dates they had set aside. We could have canceled... again, the airline was going to charge us $1,500 (for all three tickets) to cancel. Now we can use our miles and actually get money back!
With doctor bills and a good chance I will be taking time off school, we will not be able to afford to be out any more money. The great thing about being a teacher is that insurance starts over in September... so deductibles and out of pocket expenses will be starting over as well :( I just hate thinking about it. Good thing there are 0% credit cards out there, right?

1 comment:

  1. Stephanie-My thoughts and prayers are with you and your family. As we discovered in our family, cancer involves everyone in the home and your circle of friends and relatives.

    Now some practical advice--People feel the need to help the cancer patient in some way. Don't be afraid to say "We could really use a pot of soup and cornbread" or "my family could really use some meals I could just heat in the microwave when I'm too tired to fix anything else". Let your family and friends know what they can do around the house or yard.

    Best wishes-Donna Elwell

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